Raising awareness of Batten Disease

June 9th was International Batten Disease Awareness Day.

Events were held in Gloucester to mark the day, especially by the family of local lad Josh who has the disease.

It was a pleasure to go along and support the event at The Club at Tuffley Park, and to wear orange (no hardship for a Lib Dem!)

Thanks to all for raising awareness of this condition.

You can find out more about Batten Disease here and you can support Joshua’s Warriors here.

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